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기술
We offer a library of resources that provide accurate, balanced, and up-to-date information for new and expectant parent learning about a diagnosis of Down syndrome and other genetic conditions. Our materials are part of the National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute (HDI) and supported by the Joseph P. Kennedy, Jr. Foundation.
These resources are unique for being reviewed by representatives of the national medical and patient advocacy organizations, and they are also included in guidelines from the National Society of Genetic Counselors, the American College of Medical Genetics and Genomics, and the American College of Obstetricians and Gynecologists.
The materials are available in both print and digital formats in multiple languages. You can view the digital versions in this app or on our website (lettercase.org), request free printed samples, or multiple copies can also be ordered from our bookstore.
Our materials cover the following:
• Available health and education services;
• Life outcome information for people with different conditions
Common medical conditions;
• Helpful resources about each condition;
• Multiple translations;
Authentic photos of people with different conditions;
• Optimization for different reading levels.
“Receiving a prenatal diagnosis of Down syndrome can be overwhelming for families, leaving them wondering what life is like for people living with the condition. ‘Understanding a Down Syndrome Diagnosis’ is often described as a lifeline for families learning about a diagnosis, and I believe, as did my mother, that expectant parents need that support and information right away.”
Tim Shriver, PhD, Kennedy Foundation Trustee
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